Young people stuck in NSW aged care homes

Many young disabled people in NSW are stuck in aged care homes without alternative housing options. Source: AAP

GARY Holterman was 27 when a diabetic coma caused permanent brain injury.

Now aged 32, he's in his fourth aged care home because, according to his mother Margaret, staff aren't trained to deal with brain injuries.

"My son has been in an advanced dementia ward with people aged 80, 90 waiting to die - and he's 32," she told AAP.

Ms Holterman says her son can't tell her where he'd like to live but his situation is "desperate" now that he's developed epilepsy and dementia.

Advocates for people like Gary in aged residential care converged on NSW parliament house on Tuesday to hand over 14,500 signatures and a submission on improving conditions for young people in residential care.

The Brain Injury Association began gathering signatures in May, the same month the NSW Ombudsman released a concerning report on the deaths of disabled people in care.

Association president Paul Raciborski says 80 per cent of the 2500 people under 65 living in aged care in NSW have an acquired brain injury.

The federal government's DisabilityCare did not adequately address accommodation shortfalls, he said.

"The NDIS (Disability Care) will provide the funding but now it's about providing a solution," he told AAP.

"The danger is you'll end up as a person in residential aged care with a cheque and nowhere to go."

NSW Minister for Disability Services, John Ajaka, on Tuesday announced a statewide program to help people with a disability, their families and carers prepare for the move to DisabilityCare.

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